As parents when a child is born all we want is for them to be healthy and born without any problems. That is not always the the case though. Sometimes they are born with problems. Many more serious than others. I think it’s important to note that however a child is born they are all perfect in their own way.
At birth my son’s Doctor noticed that his head was shaped odd. Instead of being round, the sides of his head were flat. At first he thought maybe it was because of the way he was positioned in utero. He assumed it would round out on its own. When we went to an appointment a few weeks later and his head had not changed at all he referred us to the craniofacial department at Seattle Children’s. There we found out my son was born with a condition called Craniosynostosis.
While Craniosynostosis is not a life threatening condition it is serious. It can cause developmental delays, pressure on the brain and eyes, seizures, and more. Craniosynostosis is when one or more of the cranial sutures close too early not giving the brain enough room to grow.
Check out my video below for more information on Craniosynostosis and our journey.
Things I forgot to say in the video:
this hasn’t affect him developmentally yet. he is hitting all his milestones.
his specific condition is the most common and is more common among boys.
Seattle Children’s has been doing the open surgery for over 30 years.
Since making this video he has had his surgery. Everything went well and he is healing great. In the near future I will be posting about it.
Below are a few articles you can read about the condition.
Seattle children’s website has some great videos in the subject if you would like to check it out.
An article from the CDC